Wednesday 12 March 2014

Organ Donation




Recently in the news, there have been stories of how a record number of lives have been saved as organ donor numbers in the UK rise. According to the Guardian, 3,489 patients received new body parts from a total of 1,323 donors last year. This is wonderful news, and these figures also strongly highlight the fact that organ donors help to save multiple lives. However, despite these promising figures, the sad fact remains that 3 people die every day whilst waiting for a transplant and there is still a huge shortage of organs.

Currently in the UK for example, there are 244 people waiting for a heart transplant. 30 of these are children. There are 268 people waiting for a lung transplant, including 11 children. And the number of those waiting for a heart and lung transplant amounts to 18, of which 3 are children. One of those 18 is Stacie Pridden, a wonderful young lady whose blog I had the pleasure of stumbling upon whilst recovering from surgery. Stacie is such an inspiration, and reading the stories she tells on her blog has given me such an insight to what life is like on the waiting list. Stacie has now been waiting almost 2 years for her transplant and yet she always seems to be smiling. I strongly recommend visiting her blog (click here), and if reading this incredible young woman's words can't persuade you to join the organ donor register, I don't know what will. 

The fabulous Stacie
Another incredibly brave little boy that I know of is only 5 years old yet has spent a large part of his life in hospital. This little boy was born healthy, but a virus stole his health when he was just 1 week old. He is now in heart failure and is currently living at Great Ormond Street Hospital, having been waiting for a heart transplant for over a year. This journey has been incredibly difficult for his family and I can't even comprehend what they are currently going through. This little boy's mum has been living in London too, but this means that she must be away from her 3 other children for long periods of time. Receiving that call would save this little boy's life, but it would also vastly improve the lives of the whole of that incredible family. 

Sign the register today
Another very important person that I'd like to write about is the incredible Mum of one of my very best friends, Chloe. Chloe's beautiful Mum, Yvonne, sadly and very unexpectedly passed away last summer due to a brain haemorrhage. It all seemed to happen very fast and was so completely out of the blue - I'll never forget the shock and disbelief I felt when I read Chloe's message to tell us that her Mum wouldn't make it. I still can't fully appreciate what Chloe and her family must have gone through during this terrible time, but even when it must have felt like their whole world had been turned upside down, they agreed to honour Yvonne's wishes of donating her organs. Chloe told me that her family received a letter some time after to inform them that Yvonne was able to donate her liver to a man in his fifties who has a wife and a son, her kidney to a man in his thirties, and her lungs to lady with a husband and some children. So as well as directly saving 3 people's lives, Yvonne's donations will have also enhanced the lives of all those families. Multiple children are still able to kiss their parent goodnight in the evenings because of Yvonne. A man was spared the agony of losing his soul mate before her time thanks to this amazing woman. Yvonne gave the ultimate gift - the gift of life. I can't think of a more commendable legacy to leave behind. 

The wonderful Yvonne and beautiful Chloe


I can also count myself amongst those whose life has been improved by someone's admirable decision to donate. On the 5th December 2013, I had a new valved conduit put into my heart to combat my pulmonary stenosis (the narrowing of my pulmonary valve). This conduit is made from homograft tissue - another human's donated tissue. This conduit replaced a similar one that had been placed there 14 years previously, and so twice in my life, my health has been greatly improved by a selfless donor. Without the conduit, my heart would not be functioning well at all, as it a channel to vitally supply blood to my lungs. So organ donation is therefore something that is very close to my heart - quite literally.

Diagram of a Right Ventricle to Pulmonary Artery conduit

The people that I have talked about throughout this post are real people, not just statistics. Signing up to the organ donor register can literally save lives. After having done so, remember that it is also important to discuss your intentions with your loved ones. If ever the situation arose where you were eligible to donate, it will be your relatives that NHS staff discuss your wishes with after your death. According to a BBC News article, around 4 in 10 families initially refuse permission for organ donations, but that number drops to just 1 in 20 if the donor has previously signed the register and made their wishes known. 

You are also much more likely to need a transplant than to donate. If it came to it, would you accept a donated organ for yourself or a relative? If the answer is yes, then you should also be willing to donate. Please, please, please sign up here today.

 

Wednesday 5 March 2014

Three months post op = first blog post.

Today marks three whole months since my third open heart surgery, and to commemorate this milestone, I have decided to start a blog. This blog will include my own heart tales and experiences and will also be a collection of heart related articles and news stories from around the web that I find interesting. So perhaps I should start by introducing myself and my condition!

My name is Emily, I'm 23 years old and I was born with transposition of the great arteries, ventricular septal defect, pulmonary stenosis and subaortic stenosis. To put in simpler terms, the main arteries in my heart were wrongly connected, I had a hole in my heart, my pulmonary valve was narrower than it should have been, and there was also a narrowing in the area just underneath my aortic valve. Due to the compromised anatomy of my heart, I have also since acquired mitral valve problems. 

I had my first open heart surgery when I was eight months old at Birmingham Children's Hospital. This was the arterial switch operation to place my transposed arteries in their correct positions and the closure of the hole between my heart's ventricles. When I was eight years old, I had further open heart surgery to put in a little conduit, or tube, between the right ventricle of my heart and my pulmonary artery to help combat the pulmonary stenosis, and also to resection the membrane just below my aortic valve. Three months ago, I had my third open heart surgery at the Queen Elizabeth Hospital in Birmingham in which my conduit was replaced, my mitral valve was repaired and a patch was put on my left pulmonary artery to help with the fact it had become stretched.

I am well on the road to recovery by now. I have recently started back at work after nearly three months off and have been getting stuck into my cardiac rehabilitation exercise classes. But this recent surgery has opened my eyes to the world of heart conditions, and being able to connect with others who have shared similar experiences has been truly valuable. Supporting others who are in a similar position to myself is something I am now passionate about, and so I will be attempting to update this blog often in order to share my stories and hopefully reach out to more young adults out there with heart conditions. It is a common misconception that only elderly people suffer with heart problems, but how wrong that is!